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Monday, September 22, 2008

Long Overdue Update.. of sortas.

Alright so it might not be a complete update because really, who has time for that? Most likely I can't remember everything at the moment, but I can try.

Ivy has started Kindergarten. She started Sept 5th, 2008. It was Friday. She got accepted into the full day program, and though I was really worried about her.. she's done well. I worry about things that I realize most of parents probably don't worry about. I worry that she might forget to wipe herself and have wet underwear. She hates her clothes getting wet, would she be able to tell someone whats wrong coherently? I packed a full change of clothes. I'll bet not all the other parents had to do that. I worry that she'll have a hard time in her classes and she'll have to sit in the isolation booth I saw in the school. Now I'm not even sure thats what they use it for, but I'm guessing. I wish I knew for sure because its been on my mind since I saw it at open house. I worry that she'll try to make a friend and be turned down. Though I guess thats happened to most of us at once point. I wouldn't be a very good parent if I didn't wish my kids didn't have to go through everything painful that I did. So she has an hour of OT a week and an hour of Speech therapy a week. So far she's been doing great in both. In fact, she's been doing great in the classroom. No red lights. No yellow lights. She's stayed in the green the whole time. And I've gotta wonder, would she still be doing just as great in their motivational behavior program had she not pretty much secured a diagnosis? Would be they harder on her or expect more from her? I guess I'll never know. And if I had to pick, I'd pick that they're more leniant. The world needs more compassion.

Sierra is in 5th grade this year. For some reason that just seems like its all grown up. 5th sounds older then 4th. Older in ways that seem incomprehensible to me. She is 10 going on 16. Skipping years the way her life skipped from 4 to 8 in my eyes. Years gone that I can't ever get back. No matter. She is here with me now like I knew she would be. Her period came and went, irregular. Years before her peers. Some of which don't even know what a period is or why. Its those parents I strived NOT to be. I wanted my daughter informed, the way I wasn't informed. I was left to find out what things were from dirty books that I'd steal from the local thrift store. I suppose my grandmother felt that my father taught me enough. She wears eyeliner now, my daughter. She puts on all the makeup, she runs in the door from school to reapply.. and recently after a sleepover she was so uncomfortable the next day because she didn't have her makeup. The first thing she did when she got home was run to the bathroom to apply. The lines are dark and harsh. Contrasting her face. Forcing me to look at her as a woman. My little girl. My baby. My peanut. Even though she wears makeup, shaves her legs now, and has her period.. I dread that I will soon have to tell her that a "real" bra is almost a necessity. She loves her little sports bras. And most of all she loves that holding onto that type of bra is symbolic to her of holding onto her childhood. Few things remain, if I could but let her keep ahold of that one. I hope she remembers her childhood fondly. I hope I'm not too frequently the subject in a negative light when she inevitably sees the shrink. I love my daughter. She's doing well in school. She is popular with both girls and boys. She loves dance. She misses gymnastics. So I put her in tumbling. I worry that her father will try to change his mind. The same way he asked her if she wanted to go to school in his town with his girlfriend, at his house I'm sure. She said no. I was shocked. Stunned even. Its not often she stands up for how she trully feels. She is getting older... and every day its scary.

Piper is classic two years old. Or more honestly, what has been worse for our family.. the THREES. She screams, cries, kicks, spits, yells at me. But her smile when she's happy breaks my heart. It melts her father, who says she looks just like me. I love her and she is so special. I know she will probably grow up and feel somewhat in the shadows, and I don't want that. I want her to know that she is special in her own right. She is so very loved and wanted, and an important part of our family. Ivy is Ivy. Ivy is autistic. That doesn't mean that Piper isn't special. My therapist make the mistake of saying that I talk about Ivy a lot but she never hears about Piper. That made me pretty defensive for sure. Because I love all my kids and they are all special in their own way. Piper is a snuggle bug. She sleeps in her Dora bed half the night. (Ivy sleeps in a big girl bed in her room) and the other half of the night she is snuggled up with me. She is becoming quite the comedian, and the other two year olds in the neighborhood seem so behind in comparison to her. She's smart, and so loveable.

Odin.. what can I say? He's my boy. I never thought I'd like boys. Duncan left a sour taste in my mouth. Not only because of him, but because I feared my own inability to parent. I dind't want to face those fears. But I did. And the reward is a huge love for my son. I'm proud to say son and not feel like I want to cry. Right now he's 7 months old and crawling everywhere. He's standing up on furniture and crusing slowly. Sometimes he still falls on his face. He's eating big people food, and still nursing. Most of the time he's a good natured loving baby. He loves people in general and is usually smiling. He's wearing 12 month clothes. I love him so much. His hair is so soft and his kisses are so good in that baby sorta way. <3 you Oddie.

Chris and I are doing well. We are how we've been only better. Marraige is something you have to work on. Stranly I wish someone would have told me that before. Well no.. because I'm glad I didnt stay to work it out with him.. however, it seems silly to just sorta realize that its something you need to work on. It doesn't just come naturally. I mean, maybe it does to other people that aren't weird but to me... not much comes easily.

I'm waiting for the dr's office to call me back. They refered me to tessting for Asperger's Syndrome. There will be a bunch of paperwork to fill out and then I'll have the appointment. I'm not sure if I'm excited or scared. Confirmation or denial seems like a huge deal. Everything I put my being on hinges on this appointment. Ah well.. I'll keep you updated.

I suppose I should go to bed. Oh, and I am obligated to tell you I wrote this under the influence. LOL Yes I know it seems a bit disconnected. (ok a lot disconnected) I do realize I write better this way. No, it doesnt make sense all the time, but hey it was easier for me to write. And thats all that matters. Though if this is a blog then I guess it does matter if you can read it coherantly. ... or then again, maybe you could just read a different blog than mine. Yes thats it.

Alright peeps, I'm out. Peace.
PS. Remind me to tell you about the neighbors next time.

Wednesday, August 20, 2008

Are You Ready to Let Go?

School starts soon. Not just for my 10 year old, but also for my 5 year old. She'll be going into Kindergarten in two weeks. They had a lottery for all day K, since its a new thing they're doing. The psychologist suggested that she go all day, but I was leery. She's only done 2 hours a day for 4 days a week of preschool. Is she ready for a jump to 5 days a week, 7am-3pm? I have no idea. But she's going to be doing it. Her name came up in the lottery, and Ivy will be riding the big girl bus with her sister. (thank the Goddess for that! I'm thrilled that she'll be on the bus with Sierra, Nicolas, Sarah, Katrina, and Chris. Not so thrilled that Jenna and David will be on the bus too.. but.. can't be choosy I guess.)

Her IEP is done. Her backpack is bought. Her screening is coming up soon. I'm not sure why they want to screen a child that they already know is autistic, but okay. I don't know what good a screening assessment will do.
Her hair is cut.
She has some new school clothes. Some new supplies.

but I wonder if I'm ready. I'm not worried for the typical mother reasons. I'm worried for other reasons. I'm afraid that kids will tease her. And I know they will. The neighborhood kids do every day. She does things they think are weird and annoying. Will she be able to make friends? How long will it take her to remember their names? Will she be able to tell me about her day? Will they give me a communication notebook so I know whats going on at school?

She'll be in an hour of speech therapy, and an hour of OT a week. Thats what she's been getting now, so she's used to it. However, in school it most likely won't be individual but instead small groups. I'm not sure how well that will go.

She's been having speech and OT privatly all summer with a nice lady named Erin. There have been some speech improvements, at least during sessions. In the real world however it doesn't get applied much. She's been working on social skills with her too. She said when she writes up her paperwork at the end of the summer, she's going to be suggesting that they make her diagnosis official because her speech issues (pragmatics, social issues, expressive) are a match to those of an Asperger's Syndrome diagnosis. And there is no reason to hold off on an accurate diagnosis. Especially when she could be benefiting from more services, and more support. She needs to be in a real social skills class badly.


Her OT comes to the house once a week, and seems to be rather green. I'm not sure if she hasn't much experience with autistic children, or if she hasn't had much experience period. She's nice enough, and I'm happy with her.. but it seems to has to work too much to come to the same conclusion about something that I do. She commented that I should be an OT because I was so knowedgable about it. LOL She seemed to be thrilled and in awe at all I knew and all I've done with Ivy. I didn't tell her its because my children are MY obsession. LOL


Before Ivy ages out of Early Intervention, the OT was able to order Ivy a compression vest in purple. Its made of neoprene and its very cozy. She is also ordering a weighted blanket in Hannah Montana fabric. (I haven't written that Ivy's obsession changed did I? Its no longer Spongebob. Its Hannah Montana. In fact, we had a Hannah Montana party too) So those are two great items that she's getting for her to use. She also got her a brush to use, so we can start a brushing protocol on her for deep pressure input. Ivy likes it.

There is some school shopping left to do. Clothes for Sierra, backpack for her. Some clothes for Ivy. Registration for dance classes is done. And Ivy is down to two more Speech appointments, and one more OT appointments and then its off to school......

I have no choice but to be ready.. Kindergarten here we come!