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Saturday, December 31, 2011

Goodbye 2011, Bring it on 2012!

I've written and re-written this post several times today and I finally have realized that celebrating the new year and reflecting on it is something that I don't do very well.

I want to show appreciation for the things we have, the things we have been able to do and all the ups and downs in life, but when I'm put on the spot I can't do it. Perhaps maybe it has something to do with my memory and my inability to recall things the way others do. So while you're reading my next tangent, keep in mind I suck at writing and reflecting.

I know that this year was better than the one before it, but not by much. It wasn't as good as I had hoped it would be, but nothing ever truly is. My expectations are always so high that even I fall short most of the time. But just like soft teeth, color blindness, hyper flexibility and autism, my high expectations are deeply rooted and not easily changed. Its who I am.

Autism itself has changed a lot of things in my family this past year. Some of them have been surprising changes. Like the communication between my oldest daughter and I. Knowing now that having Asperger's is the reason we're different than other people, and one of the biggest reasons we are so much alike has been a blessing to us. Instead of feeling alone, we both have taken to texting each other when we have a need to be understood. Sometimes our conversations are lighthearted and fun, and other times we end up discussing some really deep things. Some of my happiest moments as a mom have come from these conversations. When your child says something to you, and you can hear yourself in what they say.. (and its something good..) the proud realization that you have shaped a human being is felt. This year was filled with so many of those moments that I can only guess it means she's growing up..

This year was one of forgiveness and moving on in my life. I won't say that the moving on part has been completely finished, but I'm trying my best to wake up each day with a smile. If there would be any resolution to keep, or attempt in this new year it would be to live more for myself and to choose happiness over sadness. It seems simple enough but its really difficult for me.

What makes me happy? This.
I get caught up in the every day stress of who is watching the kids, who is cleaning the house, doing dishes, cat boxes and laundry, appointments.. and to be honest, the answer is almost always "me."  I've been stuck in a battle against my husband and I'm guessing this battle won't ever be won fairly enough to make it worthwhile. So I'm going to try to resolve that those jobs are simply mine. It isn't fair. I don't think it ever will be. So instead of fighting and trying to make it fair, I need to figure out a system that makes me the happiest. Because this is my life too.

I don't have all the answers. I only know that I love my children with and without autism, and that I love my husband with and without his issues. I don't want to leave him because I have dishes to do. I don't want to feel unappreciated and walked on either. I want happiness. And being totally honest with myself.. I want control while simultaneously wanting someone else to take control. Someone else that is capable of it. And that someone else doesn't exist. So like it or not, its on my shoulders. How can I be happy with it?

How can I make each day a happy day no matter what? Is it possible to become happy even if our marriage isn't "fair"? With so many naysayers telling me that divorce is the only option, I've shut people out of my life even more than usual and I want to change that as well.

I want 2012 to be a year of honesty and happiness from the inside out. I may not be able to change the things that other people do and say, but I can change my outlook. At least I hope I can anyway.

Are you in control over your own happiness? Does it come naturally to you or did you have to work at it?

While I try to cheer myself up from having a horrible day with the kiddos (Ivy's hyperactivity is driving me crazy to be honest.. I'm considering medication.) we'll be eating overpriced Chinese food soon and celebrating the end of 2011 and welcoming in 2012 by watching the ball drop. (its so boring to me but.. its tradition) I hope your family is as blessed as mine and you're able to find happiness every day no matter how small.

I also hope that I'm able to take my own advice at least once in awhile. ;)

Happy New Year folks. <3

Wednesday, December 28, 2011

Plugged In and Checked Out

January is almost here, and with the new calendar comes more appointments for me and hopefully more answers. You see, three of us are officially diagnosed with an Autism Spectrum Disorder. Currently I have two children in various stages of evaluation, and my youngest just got referred as well. I'm so used to the testing and the questions that it seems almost silly to get official diagnosis's for anyone, but I know that without it, they might not be able to access services they might need in the coming years.

I wish I had more support, but I'm married to a man that carries different diagnosis's, all of them given in his childhood.. so really, I don't know whats going on with him. For all I know he could be on the spectrum himself. Getting him to seek out any help for himself is challenging. And being married is more like having a 6th child most of the time. He spends all of his time with his Iphone stuck to the front of his face. He doesn't play the PS3 during the day because we finally came to the agreement that he needed to stay tuned into life. So instead, he games on his phone. Somehow he thinks its different. When I talk to him, and he doesn't listen to anything I'd said. Or when I look at him and feel those feelings of love, and realize.. no matter what I can't get him to look at me back long enough to have "a moment." He's tuned into his phone literally 24/7. He's worse than my 13 year old. And he's totally checked out of life completely.

I often wonder if other women feel this way in their marriages. I feel like we've long since passed that in love stage, and we're straight into argue about absolutely everything area.

Ever since his leg surgery and his addiction, Chris has been an angry, isolated person. And since I have Asperger's you'd expect this to be okay with me.. except its not. Because its not the relationship I came into. We BOTH were introverts and we relied on each other to help us peek out of our shells. One of us continued to try and push every day, and one of us fell into the shadows and has let his childhood demons come back to haunt him.

I don't know about you.. but its not that much fun loving someone with a history of trauma. I should know, I have my own baggage and it can be daunting sometimes! Its not easy to be told that I'm doing things that remind the person of their abuse. This is something new to our relationship. We used to share our stories and talk about what happened.. never did we put blame on each other for anything.

Maybe it comes with being together for so long? Its been a decade now. The longest relationship I've ever had. Even longer than my parents had with me, ...only my grandmother knew me longer.. and its fast approaching the 15 year mark.

What I can say is this.. sometimes talking doesn't help. Most of the time it makes things worse in my case. The type of conversation that I think is helpful and makes me feel better, makes him feel shame and because of that he withdraws. Then we spend hours deadlocked. I alternate between crying and withdrawing, to trying to talk using all my communication skills and feeling defeated. Eventually I give up. After some time, if I give up completely and pretend things are fine then he'll come around. On his own time. In his own way. But the issue that caused us to argue in the first place is never resolved and inside my heart I feel sad and alone.

I think about our marriage and those feelings of sadness and isolation are what caused me to leave my last marriage and seek out that love from someone else. Knowing that I don't want that, my instinct is to work through things and try to fix it. However its really hard when one person isn't communicating at all, and the other is somehow not communicating effectively. At least half the time I feel doomed. Like a gerbil spinning in a wheel. I feel like I'm giving all of myself, my soul, and heart to my children and this marriage and not getting in return what I need to feel fulfilled and loved. I want so much to reach out, but the past has shown me that talking does no good. And it hurts so much to be rejected the way I have been lately.

I don't know whats in store for my life down the road. I only know where I am and where I want to be. I want happiness and love. I'm struggling, but still trying to keep this relationship together. I wonder if we have what it takes to still be together. I wonder if thats the right path or if we're fighting a losing battle. I don't have answers to any of those questions and its frustrating that Google can't answer it for me..

I think I need to find a pen pal, or a forum somewhere and get back into communication with other people. I need to feel like people are listening to me somewhere because I'm not feeling the bond in my home right now. Its not just being a woman with an autism spectrum disorder, but its parenting 5 children.. several of which have autism as well. My life isn't an easy one, but somehow I will make it work because I know others have it far worse. Its what keeps me going. Knowing that to someone else, I have it easy.

So how much does communication really matter in a marriage? Do you think its possible to love someone, be married, parent and have a gap in communication? Does it feed into trust or distrust? Am I doomed?