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Monday, February 14, 2011

Ivy lost her first front tooth!


"Oh my god! Oh my god! Sierra just ripped out my tooth! Oh my god!" her mouth was bloody and open in astonishment. For days she was filled with anxiety about her very loose front tooth. It interfered with sleep, school, eating, everything! Sierra was on her way outside when Ivy said, "Look at my wiggly tooth Sierra!" and Sierra said, "Want me to pull it out?" Ivy said sure. Sierra said, "Get a paper towel. Its going to hurt just a tiny bit, but it'll be super quick okay?" Ivy nodded. Sierra grabbed the tooth, wiggled it.. and twisted it super fast. And that led to the before mentioned "Oh my god's". So the lesson is, if you ask your big sister to rip out your wiggly tooth; you'd best be prepared to have it ripped out! The best part? She immediately has so much respect for her. She was now on a pedestal. Sierra was the IT girl for the day. Ivy had nothing but good things to say, and even defended her at dinner. hey might be okay after all..

Wednesday, January 12, 2011

First Nor'easter of 2011

Piper got a snow day for her 5th birthday today and after spending most of the day inside, the girls finally went out to make a few angels and wade in the nearly knee deep to me snow.

Saturday, January 01, 2011

Happy New Year! in a Cataclysm way..

I've written a bunch of blog posts that never got posted. Today I recieved a lot of messages from Blogger on my phone telling me that they timed out. It only took about a month for the notification. Oh well.

Out with the old, and in with the new! Tonight when I go to bed, I'm going to be thinking of all the things that will change in 2011. Today was the first day of the new year and although it wasn't the best day ever, I want to be sure that I'm consciously bringing something to the table every day. Someone I know made the resolution to smile more. And I think thats the best resolution I've ever heard of. Its simple and strait to the point. Smiling takes so little effort, yet we are so hesitant to do it. I know I am. I make little eye contact so its an effort for me to smile and have it be known. Smiling at the ground doesn't make anyone feel happier. So I guess my goal would be to make an effort to look at people more.

Is it a bad sign that I'm already nervous and regretting writing it?

My husband is happily waiting for me to join him playing World of Warcraft. We just bought the newest expansion Cataclysm, and I think I'll be rolling a little green goblin. "Time is money friend!"

Happy New Year everyone!

Tuesday, December 07, 2010

A House of Cards

I should have written a long time ago. Goddess knows I've had plenty to say. And anyone that knows me, or my house, knows that I have enough going on to talk about!

First things first. In the interest of disclosure, since so much was written about that time period.. my husbands oldest daughter has contacted him through Facebook. We knew it would happen when they aged out of the system. We didn't expect it to happen this soon. She is still only 17 and in state care. We also didn't except that we'd be able to so easily see his other two children connected to her Facebook page. Literally a click away. And not even a private page. There, on the other side of the most popular social networking site... were the three "missing" kids we've been searching for. We read, looked at pictures, put together pieces of the puzzle of what their lives have been like for the past decade..  I put my spying to good use and did a lot of digging. The oldest was the only one that didn't get adopted. And from what she writes on her wall, it was planned and somehow disrupted this past fall. I had a hard time wrapping my mind around why they would allow the kids to have completely public Facebook pages. I don't allow my own daughters to be that public!

So my husband and her exchanged cell numbers, because it was easier than writing inbox messages on Facebook. Of course we agreed not to say anything to the other kids that are younger, because she could lose contact with them and we don't want that to happen. They've all grown up so much. Barely recognizable from the pictures that I posted on here. And in all reality they don't us, and we don't know them. Not even his oldest.

We've also had to come to the conclusion that exchanging phone numbers might not have been the best course of action. I encouraged it, thinking they could easily write to each other here and there instead of trying to use my computer all the time. (the laptop cord fried, and Chris's computer is completely full of WoW. No really. So full that we can't play it on there because he's out of memory. Bah. New expansion just came out and we turned our accounts back on and everything. Figures.)

Where was I? Oh yes. Texting his daughter. It hasn't been easy. She texts him a lot. First thing in the morning, while we're all still sleeping.. the room lights up and I hear, "NEW MESSAGE!" from his phone on the nightstand. Oh.. its her good morning daddy message. Throughout the day there are more. Always filled with "I love you so much daddy. I miss you daddy"  Remind you of someone else you know in this family? Exactly. We have another father/daughter interpersonal issue. She hasn't changed or received the help she needed. It was that obvious. They really haven't had much of a relationship since she was 7 years old. She's 17 now. And just as dependent and immature. Whats to become of her in the next year when she ages out? The father instinct wants her to live with us. But intellectually we know that if she still has some severe issues, she can't live with us. We have 5 children and it isn't fair to them to put them in danger. Not even to reunite my husband with his child/ren.

Lest you think I'm the big green evil ogre that most step mothers seem to be. I'm not. I can just see a mental health issue when I see one. And this is a huge elephant in the room. I'm glad that Chris sees it though and for the most part we're on the same page. He's started pulling back a bit more each day. Letting more time pass before responding to her. Not getting dragged into her drama, "I made a bad choice daddy. Help me. What do I do?" type of issues that seem to be a daily occurrence with her.

I will be honest here. I can't say jealousy didn't enter my mind. And that's not right. She is his child. There shouldn't BE jealousy there. But somehow her timing, her dependency, her urgency, and her manipulation all make the situation pretty painful. For the past two weeks, she's said good morning to him first, shes' asked him about his day first, she's said goodnight first. And I'm pretty sure if you add it up, they've exchanged more "I love yous" then the two of us have. ... Its hollow. Its empty. Its a house of cards built on nothing but a fantasy of life before state custody. Nothing will ever come of it. Not even the parts that I'm alright with. Her being in our lives, and being a part of it..  I'm not sure she will be able to share her father in that way. She views her life as being her, her sister, her brother, and her father. No matter what. They stick together. But that manner of exclusion isn't going to work. It can't work like that and be healthy.

I'm waiting for the house of cards to fall down. I know it can't survive this way. He isn't able to keep up with her demands, and instead I end up texting her. She thinks she's talking to her father, and he doesn't have to try to navigate this uncertain ground. He doesn't want to mess it up, but he doesn't know how not to. Soon enough though the game will come to an end. Someone will notice she's talking to her biological family and it will be revoked. Who knows how far they'll go to stop those connections. At least if I shoulder most of the responsibility and emotional baggage, then when the cards come flying down..maybe it won't hurt him so much. Thats my hope anyway.

So as you can probably imagine, that's enough excitement to last for quite awhile. However, this is MY family! Which means there's a lot more!


Update about Ivy: Her IEP was yesterday at school. She's in second grade and this is the second IEP this year. We went to reclassify her. That meant another round of tests and observations and rating forms to fill out. In the end, it was a unanimous vote to change her primary disability status from a child with "Speech and Language Disability" to a child with "Autism."  And what that means is that she'll automatically get a lot more services. So we left the room with all her supports for the bus in place, She's on a different bus than all the other kids in the neighborhood, which is working great so far! It goes down our street anyway so it just loops around and picks her up. That way she isn't around any of the kids in this neighborhood. She plays a Leapster or watches a DVD player that the bus company bought for her. She sits in the front seat, with a seatbelt, and she also sits with a 5th grade girl and so far, no issues at all. She gets 60 minutes of a social skills group a week. Thats two separate groups. And she gets 60 minutes a week of OT. She also has accommodations in the classroom, a weighted vest, a wiggle seat, some chewy pen toppers as well. All in all it was a great IEP meeting. I think our case manager ruffled some feathers, but when doesn't she? LOL

Oh, in case I didn't blog about it before (I'm sure I did though) Ivy was officially diagnosed with ADHD combined type, Anxiety Disorder NOS, and Asperger's Disorder. She also has a mild cognitive disorder that affects her working memory.

Update on Odin:  Odin has been receiving OT and related services though Child Development Services (CDS)  since the beginning of the year. They've done nothing. To be honest it was a waste of time. However, they're going to order him a new trampoline with a bar and that will make things easier for me!

He recently had a speech and language test done, and also a Vineland. He qualifies for 3-5 services easily. His articulation alone qualified. Yep thats right, the opposite of what CDS told me. They said, and I quote "He just has too many words and he's having a hard time saying them. He'll catch up."  Well he hasn't. Its only gotten worse since he's older! So now that he's aging out of the 0-3 and headed to the 3-5 services, they are offering him a specialized preschool 3 days a week for 3 hours a day. They'll give him OT and speech right there with qualified people. Small class, no more than 6-8 kids at a time and they work on a lot of adaptive functioning, schedules, routine, etc. From what people have told me, its a great opportunity. I might take them up on that.

Theres a lot of detective work I need to do first. Putting a 3 year old into pre-school is something I haven't done since Sierra went to Headstart. But she was so much more advanced and by that time, used to separating from me because of the whole shared parenting thing. I don't know if I'm ready to let my baby boy go. It seems too early to me. Everyone talks about how important catching things early is, and how much his autism symptoms will improve.. but since I'm not in the "cure all the autism" camp I'm not really sure how I feel.


(note: This was a post that I had in my drafts and forgot to publish. Oops!)

Monday, November 08, 2010

Our Little Buddy, Kyle. Rest in Peace


Tonight, Sierra saw something on her facebook page. One of her friends Liam was talking about how he missed his brother Kyle. "Mama? Does he have another brother named Kyle, or is he talking about Kyle Kyle??" I ran over to look at her screen and froze when I saw his words. Something something Kyle died in his sleep.. were the only things I got out of it. I immediatly picked up mu cell phone.

I called all the numbers I had for Kyles mother, my friend Heather and left a voicemail on one, and talked to her father on the other number. He said Heather wasn't doing well at all. I've reached out to all our mutual friends for support, and thats all I can do. ... which sucks. Its not good enough. When all I can do is sit here.. it doesn't feel like enough.

We babysat him all summer. We were going to this past summer, but they moved to Kennebunkport and he went to summer school instead. But the summer before he was with us nearly every day from morning til night. It was hard dealing with 6 kids, not to mention that him and Ivy clashed big time sometimes! But he was so funny and made us laugh all the time. He never let anything slow him down and he was always willing to try no matter what. He overcame quite a bit while he was here. I watched him learn new things and change.

I have so many videos from that summer. I suppose I should put them on DVD. When the time is right, Heather will want to have as many memories as she can. I certainly took a lot of pictures and videos. I took a picture of them a week ago. Halloween night. It hasn't even been uploaded from the camera yet....

Things change too fast for me..
I've struggled a lot with letting go of the past. Seeing friends, like SOTM people.. seeing them change and leave.. watching us go our separate ways. So many break ups, divorce, changes, and death. ... the good times as a group are gone. The bonds and friendships have changed. For good. You can't go backwards.
two deaths in one year is too much for me. I can't begin to imagine how Heather feels. I don't. I can't. It hurts too much already. :(

Kyle was Ivy's only real friend. The only birthday party she'd been to. The only person that has been in her life since she was born. The only other person she really connected with. She knew he had autism and some of the same problems she did. ... how do you explain death to a child that has a hard time grasping things like that? How do you even begin to tell them? Should I just not? Its going to cause so much anxiety for her. Ugh.

I'm rambling. Its past my bedtime and I know you're in bed. .. I just needed to vent. I'm sorry. I shouldn't be up at 1am crying. I lit my candles, and I sent out my calls for help and support. There is nothing left for me to do, and yet I feel so helpless. I wish there was something more I could do.


I'm going upstairs to kiss my babies, and snuggle in between two of them and fall asleep. ♥

Kyle loved Spongebob. He loved to collect stuffies from popular Disney movies. Kyle also had
autism. He was so full of life and happy all the time. I just don't understand. Why Kyle? Why Avis? Why Grammy? Why Mom?

I'm not sure I will ever understand.

Tuesday, October 19, 2010

The Post-poned post

Isn't it funny how a simple phone call can change things sometimes?

I've struggled with the idea and implementation of anonymity on the internet for years. I'm not sure when it started to matter to me. Probably the first time I was judged for something, and the consequence was astronomically huge. Never mind that the judgment was erroneous. That didn't matter. What mattered then and now, is that I was changed. I learned quickly that being myself wasn't acceptable. So I vacillate between hiding and being completely public. Some days my Twitter time line is public, and other days I get scared and turn everything private. They say that everything that gets put on the internet is there to stay, and that sort of permanency alone is scary.

I'm not good at remaining anonymous. Maybe its the autism. Maybe its my inability to lie about things that are important, or understand why someone would act malicious because of something I wrote. Its probably because I cannot wrap my brain around some things. Why can I look up the most heinous things online that others have written, sometimes depicting death, torture, rape, you name it and its out there... and yet I feel scared posting about my childrens day, or what I had for dinner last night.

It all comes down to shame and the feelings of guilt it conjures up. Inappropriately placed shame. Why is it there? I don't know! I'd like to know. Probably some psycho mumbo-jumbo about being devalued and emotionally abused or neglected. I only know how it makes me feel. I shouldn't get scared and filled with paranoia and anxiety at the smallest thing. I shouldn't be worried that something I say will cause the DEA to knock on my door and destroy my empire built on drug money from the meth labs in my kitchen, or worry that the neighbors dog is secretly a police dog and when I go to check the mail the dog will be able to sniff out the marijuana that's in my pocket. Especially considering I don't smoke marijuana, there isn't any in my pocket, and I'm pretty sure the drug dealers in the neighborhood don't have an ex police dog. To be honest, a dog has never approached me since I've been living here. As you can see, there is no reason for any of those things to be in my head, let alone be something thats causing anxiety.